The
subtitle of Parallel
Play
is Growing Up with Undiagnosed Asperger’s. I put it down here in
the text so it wouldn’t spoil the energy of the main title with
something seemingly less mysterious. The irony, tho, is the real
mystery:
“Asperger’s.”
Asperger’s
syndrome, as it is commonly
known,
wasn’t recognized by the American
Psychiatric Association until 1994, yet
this
neurological anomaly
had been identified fifty
years earlier by the Viennese pediatrician Hans Asperger, who wrote
of the
relatively mild form of autism, “For success in science or art, a
dash of autism is essential.” Dr. Asperger’s vision for this
benefit evidently did not extend to the more mundane human endeavors,
such as business or evangelism, where we now find it mentioned in
connection with two prominent individuals. Greta Thunberg, the
sixteen-year-old Swedish environmental activist, and Mark Zuckerberg,
co-founder and CEO of Facebook. Thunberg proudly refers to her
Asperger’s as “my
gift.” While comics
taking him to task for his politics
have mocked Zuckerberg’s Aspergian-like mannerisms,
the social media magnate
has not addressed
them publicly. If in fact he is “on the spectrum,” as insiders
refer to the myriad degrees of autism, perhaps he does not know it.
Such was the case for two other highly successful individuals, both
who’d had no idea they
met Dr. Asperger’s diagnostic symptoms until well into adulthood.
John
Elder Robison, author of Look
Me in the Eye,
was forty when a friend gave him a copy of Asperger’s
Syndrome,
by Tony Attwood. “I picked it up. Warily. 'What the hell is this?'”
He started reading, and recognized himself in the list of symptoms.
These included problems with body language such as eye-to-eye
contact, appropriate facial expressions, postures, and gestures, and
a lack of emotional interaction with others. He’d already struggled
through a tortured childhood and adolescence to find success through
technology, which led him to become the special effects genius behind
KISS,
the rock band known for it’s stunning pyrotechnics on stage. He
progressed from there to the corporate world where he helped design
some of the first video games and talking toys.
Tim Page |
Tim
Page made it to age forty-five wondering why he was so different from
others—brilliantly intelligent but incompetent socially. Three
years earlier he’d won the Pulitzer Prize for Criticism as chief
classical music critic of The
Washington Post. Now,
depressed after failing
at a senior administrative job with the St. Louis Symphony, he sought
professional help.
“One psychiatrist concluded
that I was bipolar and put me on lithium, which did nothing but make
me feel weirdly outsized, as though my body stretched up miles from
the ground, like a Giacometti figure. Another doctor suggested a new
anti-anxiety medication, which I duly added to the clutter of bottles
by my bedside. And then, after a series of family consultations, a
New York psychologist named Keith Westerfield surprised me first with
a thoughtful explanation and then with a formal diagnosis of
Asperger’s syndrome.”
He read a book of essays on
Asperger’s then, and “felt as though I had stumbled
upon my secret biography. Here it all was— the computer-like
retention, the physical awkwardness, the difficulties with peers and
lovers, the need for routine and repetition, the narrow, specialized
interests...had they created a developmental disorder just for me? I
was forty-five years old when I learned that I wasn’t
alone”...something that
had tortured him especially as a child, which he describes as “an
excruciating awareness of my own strangeness.”
Attempts to relieve his
anxieties then included glucose-tolerance tests, anti-seizure
medications, electro-encephalograms, “and an occasional Mogadon
tablet to shut me down at night.”
On the positive side his mind
was phenomenal. He recalls memorizing
entire books, including
“vast sections” of an encyclopedia merely by skimming the pages.
Despite feeling socially incompetent, he persisted, gradually
learning to interpret social cues and respond
appropriately in
conversation with strangers.
There
still is no cure for Asperger’s, nor are “Aspies,” as we (yeah,
me, too) call ourselves, likely to wish a trade-off—our gift for
“normalcy.”
“Overstimulation
of any sort remains a positive horror,” Page
tells us, “and I am most
content either alone, with people I have known a long time, or with
the occasional new friend I make and love instantly, as though we
were born together.”
He can’t bear to make eye
contact when speaking of things that arouse deep emotions. “Moreover,
although I’ve had a prescription for eyeglasses for the past twenty
years, I’m most comfortable not wearing them...I rarely wear my
glasses now, for they make
me aware of too much. All of a sudden, it feels as though I’ve
been cast into a world of strangers, all staring at me, so clear and
so close that I’m flooded by the intimacy.”
Without warning, a need to
escape can demand that we flee, and we do.
In order to fit in, Aspies
must learn to act, and Page describes various celebrities, mostly
entertainers, who served as role models for poses and mannerisms.
Yet, he maintains, the acting itself is sincere. “The fact that my
understanding of affection, comradeship, and human empathy has been
hard-won rather than hardwired from the start does not make those
feelings less genuine.” Nonetheless intimacy has continued to give
him problems.
At twenty-nine he married his
best friend, “a brilliant and intuitive woman, someone I admired
and cared for and to whom I felt and feel enormous loyalty. But my
capacity for intimacy was then very limited and the marriage lingered
but couldn’t last. Our best moments were the births--gory,
violent, and spectacularly beautiful—of our three sons, when I held
on to one of her legs, mopped her brow, gave whatever comfort I
could, and eventually cried for joy as a brand-new child was laid on
her belly. How I pity my father—and his father and most Western
fathers back to the beginning of the modern world—so long excluded
from these astounding communions!”
Much later, after his
Asperger’s diagnosis, he fell in love, which, he says, astonished
him. The marriage lasted four years.
He describes it as bliss:
“I had never imagined
sustained contentment, and certainly not in the company of another
person. Yet here it was: even making the bed together in the morning,
an act that had hitherto struck me as Sisyphean, took on meaning, as
the prelude to another gloriously ordinary day, to be followed by
tea, the newspapers, a couple of hours of work, and then lunch in the
neighborhood. While it lasted, everything was enhanced; the only
thing I can compare it to is that moment when The Wizard of Oz
turns from black and white into color.”
He says he resisted the
relationship as long as he could, worried that “if I let her in,
what could I ever do if she went away? But I found myself invaded,
physically and emotionally, and, for the first time in my life, I was
ready for it. Thereafter, I considered any day not spent with her a
day diminished. I was no longer a scared kid being taken to bed but a
full and eager partner, and I lived for several years in a constant
state of amazed and grateful surprise…
“And then, suddenly and
without warning, she had to leave and she was too regretful or too
solitary or maybe simply too compassionate to tell me why. And I
became a crazy man, so stunned and shocked that I felt mortally
wounded. I’d finally found a mate— somebody I liked, loved,
respected, admired, and lusted for all at once. Now I was alone
again. I couldn’t comprehend what had happened, and whenever I
believed it, even for a moment, the pain was unbearable.”
Then came the familiar stuff
of heart-broke country songs...
Neither of
his two marriages are listed on his Wiki
bio page,
which tells us he is currently
Visiting Scholar in Residence at Oberlin College.
“Aspies are predetermined
individualists,” he concludes in Parallel Play, “people
both condemned and liberated to live in our own worlds--but, after a
while, if we can summon up the courage, we stop apologizing for it.”
Very interesting book and topic, Mathew. I have a grand-nephew who was diagnosed with Asperger's Syndrome, I guess when he was around 12, yet I don't know that much about how he is doing now, since I am not close to my niece.
ReplyDeleteHe's lucky they identified it early, Tracy, giving him an advantage in learning to cope with the gift. Took my 3/4 of my life thus far.
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